Multisectoral approaches to increase patient engagement for better cancer control

This course will draw on practical examples and approaches from across sectors to outline how the engagement of patients in decision-making processes along the cancer control continuum leads to better quality in cancer care. Participants will access latest findings, strategies and tools to reinforce patient engagement as well as testimonies from patients, survivors and caregivers themselves to explain how to best ensure patient-centred systems and increase the quality of cancer care in various settings.

Course Overview

For more detailed information about the structure of this course, including a breakdown of the modules and speakers follow the link below.

Towards Patient-centred cancer control: Patient engagement in decision-making processes along the care continuum is a key aspect of patients' rights and, as such, it is an essential prerequisite of the quality of cancer care in all health systems. Achieving a patient-centred system requires that all stakeholders take into consideration the patient perspective in their activities related to cancer research and care. It is also of utmost importance that patient organisations get the necessary knowledge regarding the opportunities to voice their perspectives and feel empowered to have their say in research, care, and support as well as survivorship programmes and be considered as a driver for change in all health systems.

Sharing best practices across sectors: This course will draw on practical examples and approaches from across sectors to outline how the engagement of patients in decision-making processes along the cancer control continuum leads to better quality in cancer care. Reflecting multisectoral perspectives is critical to ensure that this landscape of patient engagement is comprehensive, and that the patients’ voice is considered at every step of the cancer care continuum. This Master Course will take advantage of the unique position of UICC as the “Union” of the global cancer community to gather in one place the expertise of its members, partners and other stakeholders, therefore offering a multifaceted learning journey to its audience.

A learning journey for practical impact. The methodology of this Master Course will combine:  

  • An online series of 12 webinars (recorded presentations with Q&As) by experts from all relevant sectors including civil society, patient groups, public and private sector.
  • "Cancer Patient’s Voices” podcasts, a series of short, inspiring interviews with a representative of a patient, survivor, or caregiver, on the specific topic discussed by the experts.
  • The online component will also benefit from advanced education technologies offered by UICC’s eCampus platform, providing a one-stop shop with key resources, interactive content and links to opportunities for each topic.
  • All materials from this Master course will be designed for sustainable use as a comprehensive introduction to patient engagement in cancer control.

Target Audience

The following audience would particularly benefit from this course:

  • Patients, survivors and caregivers willing to engage personally in representing the patient / caregiver‘s perspective
  • Cancer societies, NGOs managing patient support groups as part of their mission
  • Other stakeholders interested in further engaging patients at all stage of the cancer continuum, being research, prevention, care, rehabilitation and palliative care, such as policymakers, regulators, healthcare providers, researchers and others. 

Learning Objectives

After completion of the course participants will be able to:

  1. Provide participants with the latest findings and knowledge about strategies and tools to reinforce patients’ engagement in cancer care and beyond
  2. Ensure a People-Public-Private Partnership approach through the contribution of experts from all sectors to provide their insights on various aspects of patient engagement
  3. Engage participants in concrete practical exercises in order to experience situations and opportunities to voice the patient or caregiver’s perspective

Course structure

  • 3 modules, divided in 6 topics (see syllabus). 
  • Each topic is taught through 2 webinars, 1 podcast and 1 short assessment and/or assignment.
  • Participants have 2 weeks to complete each topic. 
  • Each topic is designed to be done in 50 minutes (approx.)
  • The total time estimated for this Master course is 5h 30 minutes.

Course Timeline

1 May - 12 June 2020 Applications open
15-30 June 2020 Review of applications and notification of selected participants
6 July - 13 October 2020 Master course delivery
Meet the course faculty

Course Leaders

This Master Course will be led by UICC with guest speakers representing all sectors - namely, patients, caregivers, advocates, regulators, policymakers.

Mélanie Samson

Mélanie Samson, LLM, MPH, PhD

Title: Senior Manager, Capacity Building 
Organisation: Union for International Cancer Control

Mélanie holds a Master’s degree in international law, a PhD on global health law as well as a Master’s degree in Public Health/global health leadership. With a special focus on right-based approaches to public health, Mélanie has an extensive academic and professional experience in (and passion for) access to medicines, quality of cancer care and policymaking at the national and global levels. As part of her work at UICC, Mélanie is leading the development of the Patient Group Mentoring programme as well as the regionalisation of capacity building activities. She also teaches a course in global health law and regulations at Sciences Po Paris and has published a number of studies on the role of normative approaches in promoting global health and access to care in developing countries.

Marta Pazos

Marta Pazos Belart, MA

Title: Capacity Building Manager
Organisation: Union for International Cancer Control

Marta holds a Bachelor’s in Law and worked as a lawyer for several years. After specialising in children’s rights and protection through her Master’s degree, she has been working in non-governmental organisations focusing on programme and project management. Since joining UICC in 2016, she has been part of the regionalisation of UICC’s capacity building opportunities, engaging with members worldwide and learning about the patients’ journey, ensuring the rights of patients are at the core of all endeavours.

Contributors - Guest speakers

  • Alex Filicevas, All.Can

  • Alexandra Núñez, Unidos Contra el Cáncer (Asociación Tour Rosa - Costa Rica)

  • Anna Cabanes, Global Focus on Cancer

  • Antonella Cardone, European Cancer Patient Coalition (ECPC)

  • Bahija Gouimi, AMAL

  • Carolyn Taylor, Global Focus on Cancer

  • Christiana Mitsi, Hellenic Association of Women with Breast Cancer “Alma Zois”

  • Dave Fuehrer, GRYT Health

  • Diana Gittens, NCD Alliance

  • Eydith Comenencia Ortiz, Roche (F. Hoffmann La-Roche Ltd)

  • Fabian Bolin, War on Cancer app

  • Frances Reid, World Ovarian Cancer Coalition

  • Hayley Jones, McCabe Center for Law & Cancer

  • Karen Khoury, Children’s Cancer Center of Lebanon (CCCL)

  • Kathy Oliver, All.Can

  • Manjusha Chatterjee, NCD Alliance

  • Nicholas Brooke, Patient Focused Medicine Development (PFMD)

  • Rachel Kitonyo, McCabe Center for Law & Cancer

  • Ranjit Kaur, Breast Cancer Welfare Association Malaysia

  • Ratna Devi, International Alliance of Patient Organisations (IAPO)

  • Sanja Njegic, Roche (F. Hoffmann La-Roche Ltd)

  • Viji Venkatesh, The Max Foundation

Last update: 
Thursday 3 September 2020