Information and support for metastatic breast cancer patients in Malaysia

Context

According to the Malaysian National Cancer Registry Report 2012-2016, 47.9% of breast cancer cases in Malaysia were detected at stages III and IV.[1] In Malaysia, there are few programmes tailored to the needs of metastatic breast cancer (MBC) patients and according to the National Cancer Society Malaysia (NCSM) there is a general lack of knowledge about MBC in the local community. In order to raise awareness about the disease and to develop resources that are specific for these patients, NCSM has created a webpage specifically dedicated to MBC patients on their website.

NCSM provides clinical services, as well as education and support to people affected by cancer in Malaysia. It supports patients and caregivers throughout their cancer journey in order that cancer patients can attain the highest possible quality of life.

Project description

NCSM received a SPARC MBC Challenge grant in 2015 for their project “Information and support for metastatic breast cancer patients in Malaysia”. The goal of this project was to create a webpage hosted within the NCSM website specifically dedicated for MBC patients and that acted as a “hub” to pool information and resources.

The webpage created contains information on MBC as well as a live chat function for patients, and news on the latest updates on treatment. Through this webpage, MBC patients are oriented towards the relevant support needed. The live chat allows MBC patients the possibility to chat with each other and access peer support in their journey.

Impact

The webpage was published in 2017 and has raised awareness. The webpage also elicited participation from the MBC community in Malaysia, who have also been subsequently encouraged to join NCSM’s support groups. Additionally, a Breast Cancer Forum was organised in October 2017, which was attended by about 60 breast cancer survivors, healthcare providers and in which the webpage and online facilities were promoted.

More

Organisation’s website: NCSM official website

References

[1] Ministry of Health Malaysia. Malaysian National Cancer Registry Report 2012-2016. June 2019. Accessed [11 March 2020]. https://drive.google.com/file/d/1BuPWrb05N2Jez6sEP8VM5r6JtJtlPN5W/view

(Information from the project description and context is compiled from the SPARC reports)