Accurate data collected by cancer registries are essential for improving patient care, efficient use of health programme funds and driving new research.
While cancer registries may exist for adult cancers, documentation of childhood cancers is poor, especially in developing countries where 80 percent of all children with cancer live.
On World Cancer Day 2013, UICC and the International Society of Paediatric Oncology (SIOP) are joining efforts to launch a global campaign to ensure that:
- paediatric cancer registries are integrated into global surveillance work and can benefit from the advice, training and capacity building offered by the Global initiative for Cancer Registry Development (GICR) – visit the GICR website ;
- the current status of peadriatic cancer registries is monitored, and UICC’s global status table for cancer registries as well as National Cancer Control Plans (access the Global Status Table) will be augmented with data on childhood cancer;
- best practice and expertise from paediatric cancer registries can be shared globally as well asexperience from UICC members (such as the St Jude Children’s Research Hospital and the Committee on Developing Countries of SIOP), and relevant projects such as My Child Matters (MCM)
This campaign is particularly timely as 2013 will be a critical year for cancer control planning, with governments committed to developing Non-communicable Disease Plans before the end of the year. . It is essential to provide momentum to the scale-up of efforts to generate global data on childhood cancer that are accurate and will inform childhood cancer planning at the national, regional and global levels.