Networks and Partners
Cancer planning and registration
Population-based cancer registries (PBCR) and National Cancer Control Plans (NCCP) are central to the effective use of resources for cancer prevention, screening, diagnosis, treatment and care. PBCRs and NCCPs are the foundation stones of comprehensive cancer control, and feature as the first two targets of the World Cancer Declaration.
The International Cancer Control Partnership (ICCP), formed in November 2012, is a group of organisations engaged in supporting country cancer control planning efforts. Through the ICCP, these organisations, including the WHO, CDC, NCI-USA, and UICC, are committed to working together to ensure that all countries have a well-resourced, quality cancer control plan, integrated with non-communicable disease control efforts.
The ICCP Portal is a one-stop stop for cancer prevention and control planning. It hosts topic-specific networks across the cancer care continuum that identifies best practices, key resources and gaps in those fields.
The Global Initiative for Cancer Registry Development (GICR) is a multi-partner response to the disparity in robust cancer statistics across the globe, led by the International Agency for Research on Cancer (IARC) and Union for International Cancer Control (UICC)
The initiative is designed to:
- Empower countries to produce reliable and high-quality information on the burden of cancer
- Improve the breadth and quality of local data through a population-based registry approach
- Strengthen health information systems
- Facilitate planning of prevention, early detection, diagnosis, treatment and care of cancer.
So far, six regional centres have been established to provide training and support, fostering networks for cancer registries in all regions of the world. Experts have visited 36 countries to assess the current status of current registration and the potential for change. More than 20 regional courses have been delivered to train more than 400 registry staff and, to supplement training, referenced materials have been developed and disseminated.
CONCORD is a world-wide programme for surveillance of cancer survival, led by the London School of Hygiene & Tropical Medicine, and in partnership with IARC. The most recent study examined data for 26 million individual cancer patients diagnosed 1995-2009, provided by 279 cancer registries in 67 countries.
CONCORD helps to generate robust data on trends and inequalities in cancer survival around the world. These data support the development of cancer control plans in many countries. Future data will support evaluation of the effectiveness of national programmes in delivering early diagnosis and access to more effective treatments.
CONCORD results can be found here.